Many of you know that chronic constipation has been part of Brennan's life for a long time (over two years, to be exact!). After trying different remedies and enduring some pretty bad instances of diaper rash, we were referred to a pediatric gastroenterologist back in January. Despite much tinkering with a daily dose of Miralax, it didn't seem to help. The kid just seemed to leak. And diaper changes were endless.
After expressing frustration to our GI doc a couple months ago, he had Brennan do a Sitzmarker study where he swallowed a bunch of little markers and was x-rayed five days later. Ideally, every marker should have passed from his system. Unfortunately, our little guy had quite a few still left in him. This seemed to indicate a motility disorder, where things just don't pass through his system the way that they should.
We received a referral to a motility specialist...in Winston-Salem. Four hours away. Not exactly close. But we need some answers and some assistance in figuring out how to help Brennan with this issue. We headed down there this past weekend for his appointment on Monday morning.
It was definitely a productive trip. We definitely felt like the doctor was very understanding with what has been going on. We really feel like we are finally on the road to making some progress. Brennan was a trooper during his appointment! Owen even did pretty well as well, despite being confined to his stroller most of the the time!
He had some blood work done to rule out anything like problems with his thyroid or celiac disease. After doing an x-ray, it was discovered that his colon is again completely full, so we are in full swing of doing a complete clean-out.
We are waiting to hear back from the hospital there in order to schedule our next appointment which will be a 3-4 day hospital stay for Brennan while the hospital does another complete clean out in preparation for a colonoscopy. Once we find out about that appointment, we'll be able to figure out what it will look like for our family in regard to traveling down there again.
This has definitely been a long road for us to have already traveled and there is still a long road ahead of us. Brennan essentially has to relearn how to go to the bathroom (which will result in a referral to a physical therapist who can help with that process, but she is thankfully at VCU here in Richmond), and that process could take another year or so.
We would covet your prayers for Brennan! The hospital stay is not going to be fun for anyone involved. The clean out we are doing now is also not really fun. Necessary, but not my idea of a good time! We will keep you posted as things progress with these upcoming appointments.